Wanting to Belong

(the second part of "why I can't be a Muslim....ever" will be posted next time but will be taking a break for this post)

This weekend just gone I had the supreme privilege of being asked to go down to New Zealand's most Southern city, Dunedin, to speak about my experience with mental illness and how the church can take part in the healing and reintegration of people with mental illness back into the community. I was there from Friday afternoon til Monday morning and managed to squeeze in six different talks to a variety of groups and churches.

Apart from being absolutely shattered I loved my time down there. It was an awesome city with an awesome vibe and beautiful architecture. Below is the main talk I gave on the Friday night to a bunch of different church people (along with pics of my time in the beautiful city). I hope you enjoy.

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Mary was upset. A man that she didn't like was whispering nasty things in her ear and touching her inappropriately, and she didn't like it. She told him to stop it but he wouldn't go away. So she started to yell at him, screaming at him to leave her alone. When I found her she was lashing out at the man and screaming at the top of her voice for someone to help her.

Natasha knew that she was sick. She could see it in the mirror every day. Her skin was starting to fall off her bones. She could see where it was tearing and bleeding and she didn't know how to stop it. She had been to the doctor many times about it but they kept telling her that it was ok. She knew it wasn't ok, and by the time I heard her story she was in a panic about how to fix it.

Mary and Natasha are real women who both experienced extremely traumatic events. However, both these women did not receive the help they needed to process what they went through.

For any other people these circumstances would have warranted counselling, church prayer meetings for the women, friends coming alongside to console and advice. Hey would have received medical treatment for their experiences and gained compassion and love from every quarter. Mary and Natasha didn't received any of this.

Because what Mary and Natasha experienced were hallucinations brought on by extreme mental health problems.

Tonight I have the privilege of being able to talk to you about mental health and the church. I can't do that without first telling you a little about myself. I am 28 years old, have been married for two years, am completing my Masters thesis and am looking at doing a PhD in mental health and theology.

6 years ago my life was very different. When I was 12 I developed early onset schizophrenia. By age 19 I lived with full blown psychosis, was in and out of the psychiatric ward at my local hospital, and had attempted to take my life numerous times. At age 22 my parents were taking care of me full time, I had ballooned from 75 kilos to a massive 200+, and I had been told that there was no cure, that mine was a life long sentence.

Enter the little old ladies on the church prayer team. Their prayers that day 6 years ago completely changed my life and thanks to the grace of God I am able to stand before you today free from extreme mental illness, free from medication, and able to share my story and give a voice to those who are often unheard.

My life is a life of terrible suffering and miraculous healing. 

While I was unwell for all those years I was actively involved in my church. This involvement did become less the more unwell I became, but what also became apparent was that I was more UNWELCOME the more unwell I became.

No one ever said to me “You are not welcome here.” I was never asked to leave or told I couldn't join a particular group. I was always greeted warmly at the door every Sunday, and prayed over when I received communion.

I was included. I just didn't belong.

People ceased to ask me out for lunch or dinner. I saw numbers dwindled in my home group and heard the whispers that it was because I made people uncomfortable. I wasn't asked to group outings to the movies or the pools. In fact, between Sunday and Sunday I didn't see anyone from my church. I was alone at home. I was at home, lonely.

As my mental health deteriorated so did my understanding of social niceties. I was a difficult person to be around. I never stopped talking. I would speak too loud. I would fall asleep at church and snore. I would eat anything that stopped long enough for me to grab it and put it in my mouth. I was bad at personal hygiene. I was big, loud, smelly, and an embarrassment to the people around me.

So people stopped being around me. I don't blame them, I really don't. It is really hard to spend time with someone that you can't relax around. It is hard to visit the house of someone who smells bad and won't let you leave. I exhausted people. I drained them.

Natasha exhausted people too. I met Natasha in the ward. She was a sweet woman in her 50's who had experienced a psychotic break with reality. She truly believed her facial skin was tearing off. I avoided her like the plague when I was there. If she could corner you she would tell you non-stop about her face and you would be stuck there for hours. She would follow you around too if you tried to walk away. She was embarrassing and exhausting and so I went out of my way not to talk to her.

I didn't care that Natasha was genuinely concerned about her face. I didn't care that she needed someone to talk to. To me she was a crazy old kook who I wanted to stay away from.

I still think about her and wonder what happened to her.

While in the wards I was exposed to many more people and behaviours that, in my early twenties, I was completely unprepared for. I watched a heavily pregnant woman attack staff and have a fire hose turned on her in an effort to control her. I heard the same lady describe her unborn child as a demon. In reality it was her fathers. I met a 17 year old boy who was dropped off by his parents for suicidal behaviour. He remained there for a week with no visitors. I was verbally abused by a man who thought I was his mother, and I was confronted by nurses who were in equal measure compassionate and careworn. When not in the psych ward I was a daily visitor at the day ward with other mental health patients in the community. Though this was a much more pleasant environment I was surrounded by people I did not know, that were usually much older than me, and by community workers who were understaffed and overworked. The people there embarrassed me with their weird behaviours and I felt left out and alone.

One thing that these people and I had in common was we were all identified by our labels. I was schizophrenic, which meant that nothing I said could be trusted as real. Others were bipolar, which meant you had to watch out for mood swings. Others had extreme depression so they were kept away from anything sharp.

Diagnosis of a mental illness alone creates greater issues for the patient than suffering the illness alone. Diagnosis locates the illness entirely with the individual, apart from their family and environment. It claims that there is something 'wrong' with the person that defines them as outside the acceptable 'norm'. This reduces hope of recovery, creates stigma from labelling, and turns a person into a category.

Currently in NZ today it is estimated that 1 in 4 people will suffer from a mental illness at some point in their lives. It is estimated that 38% of europeans, 62% of Maori, 59% of asians, and 59% of pacific islanders will be diagnosed with a psychotic disorder, such as schizophrenia, in their life time

I find that when I speak of my experiences with mental illness I am met with 1 of four reactions by the listeners. The first is ambivalence. These listeners cannot relate, or don't know how to, and so are quick to change the subject and to move out of the area of a topic of which they have no understanding. They may think that mental illness is “all in your head” and something that can be changed by will power, or they may simply have no interest in the matter.

The second reaction is nervousness and confusion. These listeners mean well but simply do not comprehend what mental illness is or how to respond to it. They may look at you like you are about to pull out a gun and start a rampage, or they may ask to pray for you to release you from the demonic stronghold over your life. These are the listeners that will offer to pray for you but end up lost for words as they become confused as to what to pray for. They often super-spiritualize your experience in order to bring the conversation into a language that they understand.

The third group is perhaps the most interesting of reactions. They are the group that leans forward with eyes shining lapping up every word. When you have finished speaking they will say things like “that is so cool” and ask questions like “so, you could actually see people that weren't there? Was that freaky and what did they look like?” They are curiously excited by what is being said and can ask insensitive questions about experiences in the psych wards. They will also be the ones most likely to call people with mental illness 'crazy' or 'psycho'.

The last group is the minority. They are the listeners who will find you alone later, share their own experiences, cry and pray with you. They usually have had an experience with mental illness and have genuine compassion for what I have been through. But these listeners are few and far between.

Unfortunately mental illnesses have stigmas attached to them that cause reactions of fear, disinterest, and wariness. People buy into the stigma that schizophrenics, and other mental health patients, are WORTHLESS, DIRTY, INSINCERE, DELICATE, SLOW, TENSE, WEAK, FOOLISH, INCOMPETENT, NOT RESPONSIBLE FOR ACTIONS, DANGEROUSLY VIOLENT and UNPREDICTABLE. It is my experience that these stigmas are found just as much within the church as from without, but the added labels of LACK OF FAITH, DEMON POSSESSED, and ANGRY. With these labels it is easy to understand why mental health patients find it hard to contribute in a world where the stigma of your illness is often worse than the illness itself. It is also easy to understand why mental health patients often talk of feeling isolated and rejected by their communities and churches.

The simple fact of the matter is, people do not know how to respond to mental illness.

Despite a quarter of the population having experienced one mental illness of another at some point or another, it seems to be a human issue that we cannot comprehend or relate to suffering that cannot be physically manifested. People will react out of fear and amusement, but very rarely out of genuine compassion.

And this is true of the church as well.

In the last six years I have had to relearn socially cues and behaviours, get use to being on my own with no other voices to keep me company, and to survive on my own outside of my family's care.

I carry with me the memories of people who have not been as fortunate as I. The haunted eyes of the lady that believed the baby in her womb was a demon. The dead eyes of the man that received shock therapy at age 8 and has been institutionalized ever since. The fear in the eyes of the lady who believed the skin on her face was melting off. The sadness in the eyes of the young teenager with suicidal tendencies. I hold in my heart the conversations we all had about being forgotten, rejected, hated by our communities. I remember the questions I received when I told the other patients I was a Christian as to why no one in my church came to visit me. I remember the loneliness.

Which is why when I met Mary I acted in a way that I had never previously acted. 3 years ago I heard screaming coming from over my fence at about 10pm. Concerned, I went over to see what was happening and found Mary, the mother of my next door neighbour, screaming at a man that I could not see, that did not exist. She had arrived to visit her daughter only to find the house empty, her daughter away for the weekend, and it was enough to cause a mental break with reality. In that moment I remembered avoiding Natasha at the wards and so I went and sat with Mary, listened to her worries, answered queries from other concerned neighbours, and called her daughter. I sat with her all night waiting for the mental health response team to arrive with her medication. I refused to let Mary turn into another Natasha in my memory.

Jesus is a friend to the broken.

I believe this with all of my heart. Yet is it so difficult to befriend a person who doesn't speak sense, who may not even notice your existence while you sit with them, who can act in a way that seems barely human sometimes.

Yet Jesus is a friend to the broken.

I knew this couple who had met in the psych ward, fallen in love and, against the wishes of their families, got married. Everyone expected them to spiral out of control mentally and end up back in the state's care. To everyone's surprise, they found a house, moved in, and, when I met them, had been happily married for 10 years. Their love and care for each other meant that they reminded each other to take medication and see the doctor. But the most profound thing that she said to me was “he makes me feel human, he doesn't care about my labels.” They had discovered in each other a person who saw and loved the intrinsic value that the other contained in simply being human. It was through this love and acceptance that they were able to move back into the wider community and form relationships there. Their mental illnesses didn't disappear or even get much better, but in being treated as human rather than as an illness they have been able to find wholeness and healing.

It was in their example that I saw a vision of what the church could be. Loving the broken is more than praying for their healing. It is more than listening to their stories. It is more than asking questions about experiences.

It is about teaching the church as a whole to view people as human rather than as broken. To value the humanness of a person is to see past the brokenness, the medical labels, the sad stories, and to see the heart of a person who longs only to be treated as worthy of attention. It is to act out the continuing mission of Jesus to all who are difficult to relate to and to understand and to reincorporate them back into the community.

In my experience I have seen this love of my humanness a handful of times. I saw it in my next door neighbour who would come over for coffee everyday and sit and listen to me ramble, help me clean my house, tell me off if I did something silly, and give me advise on my struggles. I saw it in a fellow student who discovered that I had difficulty in picking up social cues and developed a system of signals to tell me when I was doing something wrong. I saw it in one of my lecturers who let me breakdown in his office when things were getting on top of me.

These people listened, heard the issue, accepted it and worked with it, rather than trying to change it. For me, they were the church being lived out.

I still don't know how this love for the humanness of people works in churches. There is no 5 step program about reintegrating the mentally ill back into the congregation. But in a country where at least 1 million people will be diagnosed with a mental illness at some point in their lives, there needs to be a beginning of a conversation. And it is a conversation that includes those that it is about. They may be unwell, but they will be very aware of what they feel is missing, what they don't like and how they want to be treated.

It is hard to be friends with people that don't fit, that embarrass us, that are difficult to understand. But our mindset is fundamentally wrong. This was never about US. It isn't about our comfort or discomfort, but about loving people as the created image of God, as people who embodied the Holy Spirit, as people that Jesus came in form of and died for. If we get over our own embarrassment and start viewing all people, well or not, as as worthy of belonging as we are, then maybe, just maybe, people like me won't have to feel lonely anymore.